Patient Story

At Avella, it is our privilege and responsibility to help improve patient health. Watch the story of one of our incredible patients.

 

Pat's Story

My name is Pat Elliott and I'm a two-time cancer survivor.

My first cancer was in my 30’s and my second cancer, Chronic Myelogenous Leukemia, was diagnosed in 2009.  

The CML, the one that I have is one of the rare forms of leukemia and there's only about 5 or 6,000 people a year that are diagnosed with this in the United States.

It just was appalling to me as a grown adult with leukemia that I could not find the basic foundational support that every cancer survivor deserves, needs, and should have.  

My name is Pat Elliott and I'm a two-time cancer survivor.

My first cancer was in my 30’s and my second cancer, Chronic Myelogenous Leukemia, was diagnosed in 2009.  

The CML, the one that I have is one of the rare forms of leukemia and there's only about 5 or 6,000 people a year that are diagnosed with this in the United States.

It just was appalling to me as a grown adult with leukemia that I could not find the basic foundational support that every cancer survivor deserves, needs, and should have.  

Today I have what I call a global village of blood buddies. I mean you name the country they are there. I have been blessed to represent the United States to the annual CML Horizons Meeting, which is held in Europe. 

I live with Leukemia, I live with it every single day. In terms of CML, the treatment is different.  It's basically a targeted therapy in pill form.  It’s a vastly different way of approaching cancer.

The specialty pharmacy also is set up so that they have access to specially trained people who can deal with the potential side effects and issues that you may encounter. Specialty pharmacy personnel have ways they can tap into information to help with that. You can tap into it and help yourself through being informed and educated and knowing more about what’s involved.

Everybody wants the same thing. They want to live. They want their families. They want their friendships. They want life to go on and to be good.

The immediate reaction is for someone to say, oh, I'm so sorry. I'm living with a disease that used to be terminal and I have every reason to expect to go on and live a very long life. 90% of us are expected to live a normal lifetime. You can't get much better than that. You can get help.  You can get what you need to get through this.  Trust me.  I know.  I've done it twice.  

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